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Showing posts with the label Disability

Waking Up a Stranger: The Beginning of Becoming By Dusty Wentworth

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There are moments in life when everything fractures – your identity, your memories, your body. When you're not just changed, you're remade. For me, that moment was the rupture of a brain aneurysm – a subarachnoid haemorrhage that erased 14 years of my life and reshaped everything I thought I knew about myself. I woke up in a hospital bed unable to walk, unable to remember much of my adult life, and unable to recognise the man I had once been. And so began the slow, gruelling journey of becoming someone new. A Life Interrupted Before the aneurysm, I had been many things – infantry soldier, bodyguard, husband, father, protector. I'd survived war zones, lived with PTSD, managed chronic pain, and kept moving forwards. But none of that prepared me for this. The aneurysm didn't just threaten my life, it rewrote it. Functional Neurological Disorder, fibromyalgia, partial blindness, tremors, and cognitive damage became my daily reality. My body no longer obeyed me. ...

Life After a Brain Aneurysm: Memory Loss, Chronic Pain, and Finding Purpose. By Dusty Wentworth

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Surviving the rupture changed everything — now I live in a body I barely recognise, searching for meaning in the wreckage. The doctors didn’t expect me to survive my subarachnoid haemorrhage. Some days, I wish I hadn’t. At 36, I was a fit, strong infantry soldier. At 50, I woke blind in one eye, unable to walk, with more than 14 years of my life erased. Survival didn’t mean carrying on with life as it was. It meant waking into a stranger’s body, holding memories that don’t feel like mine, and living with pain that never lets up. The Hole in My Timeline I don’t remember getting married. I don’t remember my children being born. These are the moments most fathers carry as treasures — and for me, they are emptiness. I look at wedding photos and see a stranger in my place. I hear stories of my children’s milestones and can’t recall a second of them. For me, those memories don’t exist. People pressured me: “Do you remember this? Do you remember that?” as if badgering me could som...

Built for Life: The Wheelchair That Helped Me Say, “This is Me.” By Dust Wentworth

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There are moments in life that mark a significant turning point—not because of what you gain, but because of what you finally accept. For me, designing my own wheelchair with Paul from the Mobility Centre was one of those profound moments. Let me explain. After a sudden brain aneurysm, months of grueling rehab, and grappling with memory loss and a diagnosis of Functional Neurological Disorder, one question haunted me: “Who am I now?” It wasn’t just about what I could or couldn’t do, but about my very essence. Looking in the mirror, I saw a stranger. I’d lost my past—and with it, the continuity of my identity. Becoming disabled didn’t just take away my movement; it stripped away everything I thought defined me. So, when I found myself designing a new wheelchair, it wasn’t merely a practical appointment. It was a declaration. When I was first discharged into a Centre for Neurological Rehabilitation, I faced a daunting 30-week wait for NHS wheelchair services. I simply couldn’...