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Showing posts with the label Fibromyalgia

Two Years On: Reflections from My Road to Recovery. By Dusty Wentworth

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Two years ago, my life changed in an instant. I had no idea that one ordinary morning would mark the beginning of a journey that would test every part of who I am. October 23rd, 2023 — a date that changed my life forever. It began like any other day, until suddenly it wasn’t. I collapsed without warning at home. When the ambulance arrived, stroke was ruled out, but that was only the beginning of what would become a long and life-altering journey. Doctors didn’t think I’d survive. Yet somehow, I did. ‎ The Eleven-Month Inpatient Battle What followed were eleven long months as an inpatient — three different hospitals, two stints at a Neurological Rehabilitation Centre, and countless challenges along the way. I was fighting battles not only for my health, but for my identity, my independence, and ultimately, my future. Those months were some of the hardest of my life. Every day brought new challenges: learning to move again, to speak clearly, to remember, to rebuild. The neuro...

Strength Is Not the Absence of Pain. By Dusty Wentworth

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What does a man do when his body turns traitor—when his voice vanishes, his muscles shake, and the only strength left is the will to endure? This is my life with Functional Neurological Disorder (FND)—a battle fought not on foreign soil, but within my own skin. Yesterday should have been a day of celebration. My new bespoke wheelchair—a bright orange Quickie Nitrum—had just arrived, coinciding with the first anniversary of my discharge from a neurological rehabilitation centre. But as so often happens now, my body responded to the surge of emotion in a cruel and unpredictable way. By the afternoon, the toll had arrived. Excruciating pain gripped me. My speech was gone entirely. Tremors and muscle spasms rocked my body without mercy. Despite the considerable amount of pain medication I take, the pain always finds a way through. By 01:30, the spasms had become so violent they resembled a seizure. In moments like that, medication is useless. You have to retreat into your mind,...

Rebuilding Me: A Journey Through Injury, Illness, and Identity By Dusty Wentworth

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It Started Like Any Ordinary Day I was playing a video game with my children, home for the half-term holidays—just laughter and shared moments. Then I stepped into the living room and collapsed. Pain exploded in my head. My vision vanished. My wife called an ambulance. By the time paramedics arrived, I had lost my speech and was convulsing. I was rushed to hospital and sent straight to the stroke unit. But after a brain scan ruled out a stroke, I was redirected to A&E. A Hidden Threat A doctor noticed blood in my eyes and referred me to an optometrist. With no clear answers, I was discharged. That night, an anxious consultant called. I should never have been sent home. The scan revealed a brain aneurysm, and they feared it was leaking. I returned to A&E the next morning. But no one knew why I was there. I deteriorated in the waiting room. A lumbar puncture was eventually done—too late to be conclusive. Within 24 hours, I was blue-lighted to Addenbrooke’s Hospital. T...