Dusty Wentworth

  Recovery Planning Is Not Just for Mental Health Recovery planning is often associated with addiction or mental health, but it is just as important for people living with physical disabilities and long term illness. In this context, recovery does not mean cure. It means living as well as possible within ongoing limitations, maintaining stability, managing symptoms, and reducing the impact of setbacks. A recovery plan provides structure when health fluctuates, energy is limited, or capacity drops. It shifts the focus from fixing the condition to protecting function, independence, and quality of life. How to build a simple recovery plan Define what stability looks like for you. Be realistic. Identify early warning signs that things are worsening, such as fatigue, pain, missed medication, or reduced function. Decide in advance what helps when symptoms increase, including pacing, rest, assistive equipment, or scaling back commitments. Be clear about what does not help, as well int...

  There is a particular kind of exhaustion that does not come from illness alone, but from being sent in a circle. Not treated. Not resolved. Simply redirected. It starts with a referral that promises progress and ends with a letter explaining why progress is not possible. Each appointment points elsewhere. Each service draws a boundary around its remit. Somewhere between departments, responsibility quietly disappears, and the patient is left holding the consequences. Being labelled “too complex” is not a diagnosis. It is an administrative decision. It is how care ends without anyone having to say so plainly. Living with PTSD, fibromyalgia, Functional Neurological Disorder, and acquired brain damage following a ruptured brain aneurysm is not an abstract challenge. These conditions do not exist neatly side by side. They compound each other. Pain intensifies neurological symptoms. Neurological symptoms drain energy and cognitive capacity. PTSD keeps the nervous system perman...

There are moments in life that do not announce themselves as turning points until long after they have passed. Others arrive with brutal clarity, altering the landscape of what lies ahead in the space of a single sentence.  Tuesday 13 January 2026 was one of those moments. It was my first medical appointment of the new year, and by the time I left the consulting room, I knew that a door I had been moving towards for the last two years had quietly, decisively closed. The appointment was with my neurologist and focused on my Functional Neurological Disorder (FND). FND remains the most debilitating of my diagnoses, not only because of the severity of its physical symptoms, but because of the uncertainty that continues to surround it. Each consultation carries the same fragile expectation: that a new approach might emerge, a different perspective, or a previously unexplored intervention that could offer some relief. On this occasion, that expectation lasted only minutes. Th...

Resilience is often described as the ability to endure, to withstand pressure, to keep going when circumstances are hostile or uncertain. Yet for those who have had their lives interrupted by illness, injury or profound loss, resilience is not an abstract concept. It becomes a daily practice, a series of deliberate choices, and at times a hard won act of defiance against despair. Over the past two years, resilience has been the central theme of my life. It has shaped how I have faced the consequences of neurological injury, institutional barriers and the quiet erosion of confidence that prolonged dependence can bring. This is a reflection on that period, and on my determination to rebuild. In October 2023, I became an inpatient. What was initially a hospital admission extended into a prolonged stay and then into a neurological rehabilitation centre. From October 2023 through to September 2024, my world narrowed to wards, treatment rooms and carefully scheduled routines. Reh...

The New Year is quietly under way. It is Saturday 3 January 2026, and as I write this, snow is falling steadily outside my window. It is one of those calm, unmistakably beautiful moments that winter sometimes offers. I am thankful that I have nowhere I need to be today. Snow and wheelchairs do not mix well, and what appears peaceful from indoors can very quickly become dangerous outside. This stillness feels symbolic. With the turning of the year has come a change in how I view my life. This is not because circumstances have suddenly become easy, but because something fundamental has shifted. For the first time in a long while, I am not simply surviving. I am beginning to look forward. That shift has been slow, hard-won, and costly. From collapse to survival My journey over the past few years began in October 2023 when I collapsed at home. What followed was not a single event but an extended fight to stay alive. I spent eleven months moving between hospital wards and a spec...

I live in Norfolk, a beautiful corner of the United Kingdom where the land opens wide and the sky has room to breathe. Norfolk is a county known for the Broads, for its long coastline and quiet beaches, and for those great open skies that teach a man to look up and measure his days by light and weather. It is a place that does not rush you, a place that asks you to stand still and listen. Despite the weight I carried from military service and the long shadow of PTSD, and despite a relatively new diagnosis of fibromyalgia, life was good. I lived simply and happily with my wife and our three children. We were rooted in routine, laughter, and the small honest moments that make a family whole. I believed I knew the shape of my life, and I was content to walk its line. In October 2023, without warning, I collapsed at home. One moment I was steady on familiar ground, the next I was gone. I was rushed to hospital, where doctors diagnosed Functional Neurological Disorder, linking i...

One year ago, as Christmas lights flickered across Norfolk, I sat in my wheelchair staring at a stack of unanswered job adverts. The season felt distant, muffled by exhaustion and uncertainty. I was no longer thinking about celebration. I was thinking about survival. In October 2023, I collapsed and was taken to hospital. I was diagnosed with Functional Neurological Disorder. Scans also revealed a brain aneurysm. I was told it was stable. At the time, the focus was on managing the FND symptoms that had abruptly dismantled my independence. I was transferred to a neurological rehabilitation centre as part of my treatment. In April 2024, while still there, the aneurysm ruptured. What followed was a subarachnoid haemorrhage, a four-week coma, and a life that did not resume where it left off. Independence evaporated. Simple tasks became logistical exercises. I was left living with the consequences of brain injury, severe PTSD from military service, fibromyalgia, Functional Neuro...

When I was told to “man up” after my subarachnoid haemorrhage, I just looked at my wheelchair and wondered: what does that even mean now? For as long as I can remember, “man up” has been one of those phrases thrown around casually—on parade squares, in workplaces, in pubs. It sounds simple, even motivational. But in reality, it’s loaded with expectation. It doesn’t just ask a man to be strong; it demands silence, emotional suppression, and the illusion of control. After my aneurysm ruptured, I woke up in a body that no longer played by the rules. PTSD, Functional Neurological Disorder, Fibromyalgia, and brain injury became daily realities. Pain, fatigue, tremors, memory lapses—none of it fits the cultural script of “unshakeable masculinity.” And yet, people still said it: “man up.” But here’s the truth: I’ve discovered more strength in vulnerability than I ever did in hiding behind a mask. Real courage has been admitting when I can’t do something, asking for help, or sittin...