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Showing posts with the label Chronic illness

​When the Clinical Road Ends: Reflections on My Neurology Appointment​ By Dusty Wentworth

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There are moments in life that do not announce themselves as turning points until long after they have passed. Others arrive with brutal clarity, altering the landscape of what lies ahead in the space of a single sentence.  Tuesday 13 January 2026 was one of those moments. It was my first medical appointment of the new year, and by the time I left the consulting room, I knew that a door I had been moving towards for the last two years had quietly, decisively closed. The appointment was with my neurologist and focused on my Functional Neurological Disorder (FND). FND remains the most debilitating of my diagnoses, not only because of the severity of its physical symptoms, but because of the uncertainty that continues to surround it. Each consultation carries the same fragile expectation: that a new approach might emerge, a different perspective, or a previously unexplored intervention that could offer some relief. On this occasion, that expectation lasted only minutes. Th...

Resilience: Drawing a Line and Rebuilding a Life By Dusty Wentworth

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Resilience is often described as the ability to endure, to withstand pressure, to keep going when circumstances are hostile or uncertain. Yet for those who have had their lives interrupted by illness, injury or profound loss, resilience is not an abstract concept. It becomes a daily practice, a series of deliberate choices, and at times a hard won act of defiance against despair. Over the past two years, resilience has been the central theme of my life. It has shaped how I have faced the consequences of neurological injury, institutional barriers and the quiet erosion of confidence that prolonged dependence can bring. This is a reflection on that period, and on my determination to rebuild. In October 2023, I became an inpatient. What was initially a hospital admission extended into a prolonged stay and then into a neurological rehabilitation centre. From October 2023 through to September 2024, my world narrowed to wards, treatment rooms and carefully scheduled routines. Reh...

Fightback 2026: Disability, Broken Britain and Reclaiming Forward Momentum By Dusty Wentworth

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The New Year is quietly under way. It is Saturday 3 January 2026, and as I write this, snow is falling steadily outside my window. It is one of those calm, unmistakably beautiful moments that winter sometimes offers. I am thankful that I have nowhere I need to be today. Snow and wheelchairs do not mix well, and what appears peaceful from indoors can very quickly become dangerous outside. This stillness feels symbolic. With the turning of the year has come a change in how I view my life. This is not because circumstances have suddenly become easy, but because something fundamental has shifted. For the first time in a long while, I am not simply surviving. I am beginning to look forward. That shift has been slow, hard-won, and costly. From collapse to survival My journey over the past few years began in October 2023 when I collapsed at home. What followed was not a single event but an extended fight to stay alive. I spent eleven months moving between hospital wards and a spec...

Under Norfolk Skies: A Story of Collapse, Survival and Rebuilding Life By Dusty Wentworth

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I live in Norfolk, a beautiful corner of the United Kingdom where the land opens wide and the sky has room to breathe. Norfolk is a county known for the Broads, for its long coastline and quiet beaches, and for those great open skies that teach a man to look up and measure his days by light and weather. It is a place that does not rush you, a place that asks you to stand still and listen. Despite the weight I carried from military service and the long shadow of PTSD, and despite a relatively new diagnosis of fibromyalgia, life was good. I lived simply and happily with my wife and our three children. We were rooted in routine, laughter, and the small honest moments that make a family whole. I believed I knew the shape of my life, and I was content to walk its line. In October 2023, without warning, I collapsed at home. One moment I was steady on familiar ground, the next I was gone. I was rushed to hospital, where doctors diagnosed Functional Neurological Disorder, linking i...