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Showing posts with the label Social Care Crisis

Beyond Benefits: The True, Hidden Cost of Disability in Britain. By Dusty Wentworth

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An Introduction: Beyond Suspicion and Hostility Disabled people in Britain are living with the consequences of an underfunded NHS, a fragmented social care system and a political climate that has normalised suspicion and hostility. Public debate has shifted its focus to welfare spending, overlooking the human lives at stake. The result is a country where disabled people are routinely failed by the systems designed to support them. My life as a 52 year old father of three young children, living with complex neurological and psychological conditions following a catastrophic medical event, is a case study in how severely the British state is failing its most vulnerable citizens. Catastrophe and the Absence of Support In October 2023 my life changed instantly. A brain aneurysm ruptured at home, causing a subarachnoid haemorrhage. I collapsed and awoke in intensive care a month later. The rupture left me with an acquired brain injury that affects memory, cognition, processing an...

Ignored, Delayed, Discarded: The UK's Systemic Failure for Disabled Citizens. By Dusty Wentworth

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​When I was first admitted to the Norfolk and Norwich University Hospital in October 2023, I told my wife I would be left like this. It was not a prediction born of panic, but a quiet recognition of how the system treats people who become complex, inconvenient, or costly. I was reassured my fears were unfounded, and that support would be immediately forthcoming. Two years on, those reassurances feel hollow. The reality has unfolded precisely as I expected. ​This whole period of my life began when the situation was still uncertain. Months later, in April 2024, the aneurysm that had first been suspected of leaking and later declared stable eventually ruptured. That rupture led to the surgery that saved my life. Crucially, survival should have marked the beginning of structured recovery. Instead, it marked the point where support completely evaporated. Surviving the operating theatre is one thing; surviving the system afterwards is something else entirely. ​My time dealing wit...

Failing the Most Vulnerable: Why Labour’s Disability Reforms Hurt PIP Claimants. By Dusty Wentworth

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Standfirst: A military veteran with complex, fluctuating conditions exposes how the Labour Government’s Universal Credit cuts, PIP changes, and failing NHS services are dismantling the financial and physical independence of even the most severely disabled citizens. My Fight for Care: A Veteran’s Battle with a Broken NHS I served my country — now I’m fighting for basic care. Getting a GP appointment shouldn’t require an MP, a charity, and months of chasing. But for me, a veteran living with combat-related PTSD, fibromyalgia, functional neurological disorder (FND) and a brain injury from a subarachnoid haemorrhage, it did. These conditions cause tremors, muscle spasms, seizures and cognitive impairment — and that’s just some of my symptoms. Across my diagnoses there are many more. Worse, they interact: when one flares, it can trigger or worsen the others. That cross-play creates an incredibly complex, unpredictable condition that the current benefits and healthcare systems si...