Dusty Wentworth

  There is a contradiction developing around disability. On social media, diagnoses are increasingly displayed as identities. They appear in usernames, biographies, clothing, tattoos and carefully constructed online personas. Some people describe themselves through a medical condition before telling us anything else about who they are. At the same time, those of us living with serious disability repeatedly have to insist that we are more than our diagnoses. We are told not to let disability define us. We are encouraged to work, contribute, remain independent and participate fully in society. Yet the same society places barriers in front of almost every one of those ambitions. That contradiction deserves examination. A diagnosis should explain something, not become everything I understand marking a difficult period of life with a tattoo. I understand wanting something that represents survival, adaptation or personal strength. Illness and disability can divide a life into b...

  When Disability Becomes Content: Who Gets to Tell the Truth? I am not a disability creator. I am a writer who happens to be disabled, lives with chronic illness and pain, and uses a wheelchair. That distinction matters to me. Disability informs much of my writing because it affects almost every area of my life. It influences how I travel, work, spend money, access public spaces and plan even the most ordinary day. But it is not the entirety of who I am, nor do I want everything I produce to be reduced to symptoms, seizures and suffering. My blog allows me to explore the complexity that social media often strips away. It is now read in 47 countries across six continents. My articles have also been published elsewhere, including in The Male Psychology Magazine . That is where I do the heavy lifting. Social media is primarily how I publicise that writing. It also gives me a way to share shorter pieces of honest lived experience, particularly for people trying to understand a new dia...

  The Public Loves Resilience Because It Costs Them Nothing Resilience is one of those words people like to use about disabled people. They say it with admiration. They say it with warmth. They say it as though it is always a compliment. But I have become wary of the word. Not because resilience is false. Disabled people are often resilient. Chronically ill people are often resilient. People living with pain, trauma, neurological conditions, fatigue, mobility loss, and bodies that no longer obey instruction often have to adapt in ways most people never see. The problem is not resilience itself. The problem is how easily society praises it while refusing to ask why so much of it is necessary in the first place. Resilience is praised most loudly by people who do not have to pay the cost of it. That is the uncomfortable truth. When a disabled person manages to leave the house, people see determination. They do not see the planning behind it. They do not see the medication, the pacing,...

  Why Disability Pride Month Isn't for Me July marks Disability Pride Month. For many disabled people, it is a time to celebrate identity, community and acceptance. I genuinely respect that. Everyone has the right to decide what disability means to them. Personally, however, it is not something I identify with. If I could wake up tomorrow free from Functional Neurological Disorder, Fibromyalgia, PTSD, the lasting effects of a ruptured brain aneurysm, and the limitations that made me a full-time wheelchair user, I would do so without hesitation. I do not feel pride in becoming disabled. I feel pride in adapting to it. There is an important difference. My disability has changed how I live my life, but it has never changed who I am. I am a husband, a father, a writer, a veteran and a friend. I happen to be disabled. It is part of my life, not the definition of my identity. That is why Disability Pride Month has never resonated with me. None of this is a criticism of those who find mea...